So last week we saw our specialist Dr. Albert on Tuesday and our OB Dr. Boyd on Thursday. Not too much has changed with Jasper. His head is now measuring 7 wks behind, he is starting to take on more fluid under his skin, and we can confirm that he has a hole in his left ventricle. Dr. Albert warned us that with Jasper’s condition it would be a difficult delivery even with a c-section. He explained to us that with Jasper having fetal hydrops his skin would be bloated and hard as a rock (kind of like my stomach is while I am pregnant). He said that most babies would bend and move and be flexible but Jasper will be tight and nonflexible. He also explained that I am now carrying too much amniotic fluid which goes hand and hand with a chromosome abnormality and fetal hydrops. I was 28 wks last week and when we went to Dr. Boyd she measured me and I am measuring 32 weeks. So in a month I went from measuring 24wks to 32wks. Now the plan is to keep close tabs on Jaspers weight (bc he can triple his body weight with fluid and the larger he gets the more risky and difficult the delivery will be). We are also monitoring my amniotic fluid/growth because if I keep growing at this rate it will cause more risk to my health and puts stress on my uterus and can cause complications with the preterm labor and the delivery. We are still in good shape as of now but as we get farther along we will kind of play it by ear on when we should deliver. The family seems to be doing well. We are in pretty good spirits and taking everything in stride. Chayse and Jude are doing great. We finished up school and just about to wrap up our spring sports. Chayse’s softball team went undefeated 10-0 this season. They are now in the post season tournament. Jude had a blast with tball and ready to play in the fall. I do have a funny story to tell. Jude was getting picked on a little bit at school by an older child and I told Chayse that she needed to take up for her brother…and she looked at me and said…I am not about to ruin my clean record. This comment coming from a 7 year old in summer care. She explained that she had a pink dot which was the highest dot you could attain. I explained to her that she was not trying to get into Harvard just yet and she could stand to take a little slide on her perfect record to help her brother out. Jude is our little firecracker and his record stays a little tarnished…lol Jim and I had a flash forward to when they both attend college and Jude possibly ends up in the slammer one night (God help us) and Chayse refusing to go down to bail him out because of it tarnishing her record. Stinker!!
We are now waiting on God to reveal his plan for Jasper and our family. Patience is not one of mine or Jim’s strong points which I have mentioned before. We both understand that we are not in charge in this situation and honestly I am kind of glad we are not. We made funeral arrangements for Jasper over memorial weekend and found a place to lay him to rest. We also picked out a headstone but still trying to figure out what to put on it. We have gotten several beautiful gifts with Jaspers name monogrammed on them and they always make me weep so I cant imagine what we will do when we see it in stone. Jim and I are from the same small town and the funeral home owners are great family friends that we have grown up with all our lives….so if you could call making arrangements for your child’s funeral easy…they made it easy on us. Everything went really well. We are so blessed to be surrounded by such wonderful folks. Thanks for the prayers and uplifting messages. I think we are doing quite well considering our circumstances and I know that has to be because we have such a great loving support system.
So for now we are just waiting not very patiently but waiting!!
Next Step
Dr. Boyd Thursday June 14th
Dr. Albert Friday June 22nd
Get out of bed and put one foot in front of the other and breathe in and out.
No comments:
Post a Comment