Update 04012012

Not too much to update. We are now 20 weeks along...half way to whatever shall await us at the end of this journey and beginning of another one.  For those of you who are not quite sure what Jasper Wyatt has been diagnosed with....we are dealing with a monosomy 13 Q (deletion on the long arm of the 13th chromosome) and this has caused Alobar HPE (the most severe case of the front lobe of the brain not developing or dividing). Jim and I saw a geneticist a couple of weeks ago. She could not tell us anything that I had not already researched. We both felt it was a waste of 475.00. We tend to get reverse discrimination by choosing not to terminate the pregnancy in the world of the medical community. She went as far as to saying that legally we had up until 20 weeks but we "technically" have up until 24 weeks and she could find us a clinic. We did tell her we would love to be available to chat with other parents who are going thru this challenging road and hopefully we could help them out. We just get the same statistics over and over. Yes...we know that Jasper only has 3% chance of making it to term, and yes we also know that we have a better chance of winning the lottery than him surviving more than a few min, hours, days after birth. We are not delusional, we are well aware of the possible outcomes at this point and they all suck!!. If Jasper is going to have zero quality of life and be a vegetable we would rather God take him in his first moments of life....but we are leaving that up to God. If Jasper does live and God puts his care into our hands we will do the best we can do for him and our family. We both are well aware of the challenges we will face either way. We are aware of the challenges but when that time gets here it will be another story dealing with them. We also don't judge anyone for terminating their pregnancy because you want the best for your child and your family...not to mention how fearful you are...this road we have chosen is scary and hard... so those parents that come to that gut wrenching decision do it out of their hearts and love for their unborn child and family. In my mind I still think about that decision...we would already be moving on with our lives...as my growing belly becomes the scarlet letter of conversation of when we are due, what we are having, how exciting we must be, how Aug will be here before I know it...and our children would not be begging God for a miracle instead of facing the fact they that will lose a little brother that they will never get to know. I would not have to explain that if God does not perform a miracle that he will get us thru this and we have to be an example to others that even though something horrible has happened to our family we still love and trust God. The kids are just really young to learn this lesson. I mean it is still hard for me to swallow that concept. As Jude would put it...."I thought having a baby was suppose to be happy and healthy." We still try to get thru this with some laughter. When the mega million jackpot was at 645M..and the statistics for winning were 1 and 178,000,000, Jim and I looked at each other and said WE GOT THIS...checks in the bank. Those odds are nothing...lol Like I have said before we are so busy with the kids that life has to go on. We had a fun filled day at the soccer and baseball fields this weekend. It just seems to be those weird moments where the magnitude of what is going on in our lives hits me and you cant even breath....and I will tend to ask Jim...do we "Got This"!!!!! and the answer is always YES!!! We would not have even made it this far without the love, support, and countless prayers. They always say you find out who your friends are when you are faced with a situation like this and God has not disappointed...we are surrounded with a magnitude of wonderful people who have taught us how to be better folks....THANKS TO EVERYONE WHO CONTINUES TO PRAY FOR OUR LITTLE FAMILY.


Next Appts:  April 4th OBGYN
                     April 9th specialist